Rarediseases.org - National Organization for Rare Disorders | NORD

Provided by Alexa ranking, rarediseases.org has ranked N/A in N/A and 7,982,656 on the world. rarediseases.org reaches roughly 386 users per day and delivers about 11,577 users each month. The domain rarediseases.org uses a Commercial suffix and it's server(s) are located in N/A with the IP number 141.193.213.20 and it is a .org domain.

WebMar 29, 2023 · NORD Rare Disease Centers of Excellence are diagnosing and treating thousands of rare disease patients. Learn More IAMRARE ® Program Assist researchers … rarediseases.org rarediseases.org rarediseases.org rarediseases.org

List of domain same IP 141.193.213.20

Keywords on this domain

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Frequently Asked Questions

What is a rare disease?

Diseases. In the United States, a rare disease is defined as one that affects fewer than 200,000 people. The prevalence of a rare disease usually is an estimate and may change over time. Inclusion in GARD's list does not serve as official recognition by the NIH as a rare disease and should not be used to assume that a disease is rare.

Why is rare disease development so challenging?

Many rare conditions are life-threatening and most do not have treatments. Drug, biologic, and device development in rare diseases is challenging for many reasons, including the complex biology and the lack of understanding of the natural history of many rare diseases.

How rare is a disease in Europe?

In Europe, a disease is defined as rare when it affects less than 1 in 2,000 people. While these numbers may seem small, consider that there are more than 6,000 known rare diseases which affect around 25 million people.

Are advances in diagnosis of rare diseases enough?

Advances in diagnosis of rare diseases are gratifying, but are not enough: Of the 7,000 identified rare and neglected diseases for which we know the molecular cause, only about 500 have approved treatments.

Search Results related to rarediseases.org on Search Engine

National Organization for Rare Disorders | NORD
rarediseases.org

https://rarediseases.org/

WebMar 29, 2023 · NORD Rare Disease Centers of Excellence are diagnosing and treating thousands of rare disease patients. Learn More IAMRARE ® Program Assist researchers … rarediseases.org rarediseases.org rarediseases.org rarediseases.org

rarediseases.org

DA: 40 PA: 7 MOZ Rank: 4

Home - Genetic and Rare Diseases Information Center
nih.gov

https://rarediseases.info.nih.gov/

WebIn fact, rare diseases are estimated to affect over 30 million people in the United States. While each disease is rare individually, people with a rare disease often share similar challenges such as accessing information, …

DA: 2 PA: 6 MOZ Rank: 41

Diseases - Genetic and Rare Diseases Information Center
nih.gov

https://rarediseases.info.nih.gov/diseases/

WebGastrointestinal Disease Hematologic Disease Respiratory Disease Endocrine Disease Skin Disease Kidney Disease Urogenital Disorder Cancer Showing 1 - 10 of 5910 10q22.3q23 microdeletion syndrome …

DA: 99 PA: 41 MOZ Rank: 15

What are Rare Diseases? | Rare Diseases Clinical Research Network
rarediseasesnetwork.org

https://www.rarediseasesnetwork.org/about/what-are-rare-diseases

WebRare diseases are an important cause of chronic illness, disability, and premature death in both children and adults. They take a disproportionate share of our health care dollars …

DA: 96 PA: 71 MOZ Rank: 7

Rare Diseases | National Institutes of Health (NIH)
nih.gov

https://www.nih.gov/about-nih/what-we-do/nih-turning-discovery-into-health/rare-diseases

WebFeb 28, 2023 · Rare diseases were once considered medical curiosities with little public-health impact. But though such diseases are individually rare, collectively an estimated …

DA: 96 PA: 42 MOZ Rank: 45

This Is How Patients Are Fighting Back Against Rare Diseases – …
sheknows.com

https://www.sheknows.com/health-and-wellness/articles/2739634/patients-fighting-rare-diseases/

Web2 days ago · As many as 7,000 rare diseases affect 300 million people globally. The vast majority are not well understood, and less than 5 percent have approved treatments. Yet, …

DA: 73 PA: 94 MOZ Rank: 49

NORD® Learning – Empowering through education
rarediseases.org

https://learn.rarediseases.org/

WebNORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more …

DA: 95 PA: 79 MOZ Rank: 46

Minnesota Legislature and health care: Don't forget rare-disease …
startribune.com

https://www.startribune.com/minnesota-legislature-health-care-rare-disease-patients/600262690/

WebMar 28, 2023 · Unfair, heartbreaking and far from patient-friendly, PDABs have the potential to turn the sick and those with rare diseases into casualties of a bad policy. The good …

DA: 92 PA: 7 MOZ Rank: 39

What is a rare disease?
nih.gov

https://rarediseases.info.nih.gov/diseases/

Diseases. In the United States, a rare disease is defined as one that affects fewer than 200,000 people. The prevalence of a rare disease usually is an estimate and may change over time. Inclusion in GARD's list does not serve as official recognition by the NIH as a rare disease and should not be used to assume that a disease is rare.

DA: 15 PA: 5 MOZ Rank: 96

Why is rare disease development so challenging?
fda.gov

https://www.fda.gov/patients/rare-diseases-fda

Many rare conditions are life-threatening and most do not have treatments. Drug, biologic, and device development in rare diseases is challenging for many reasons, including the complex biology and the lack of understanding of the natural history of many rare diseases.

DA: 60 PA: 33 MOZ Rank: 70

How rare is a disease in Europe?
rarediseasesnetwork.org

https://www.rarediseasesnetwork.org/about/what-are-rare-diseases

In Europe, a disease is defined as rare when it affects less than 1 in 2,000 people. While these numbers may seem small, consider that there are more than 6,000 known rare diseases which affect around 25 million people.

DA: 26 PA: 28 MOZ Rank: 86

Are advances in diagnosis of rare diseases enough?
nih.gov

https://www.nih.gov/about-nih/what-we-do/nih-turning-discovery-into-health/rare-diseases

Advances in diagnosis of rare diseases are gratifying, but are not enough: Of the 7,000 identified rare and neglected diseases for which we know the molecular cause, only about 500 have approved treatments.

DA: 89 PA: 15 MOZ Rank: 40

Alexa Rank

GLOBAL RANK

7,982,656

Alexa Reach

0.0000170349

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Alexa Rank Country N/A

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Daily Unique Visitors

386

Monthly Unique Visitors

11,577

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Total visitor

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Total visitor

United States

2,476

Indonesia

1,937

Taiwan

630

United Kingdom

559

Brazil

506

Nigeria

442

Egypt

372

Hong Kong

351

Canada

351

Australia

306

Philippines

219

India

213

Malaysia

210

Spain

174

Germany

169

Mexico

162

France

153

Italy

141

Turkey

130

Iraq

118

Thailand

116

Netherlands

111

Israel

110

Cambodia

Algeria

Ireland

Romania

Jordan

Poland

Ghana

Argentina

South Africa

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Ukraine

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DNS Record

Host	Type	Class	TTL	Extra
rarediseases.org	HINFO	IN	3789	Cpu: RFC8482 Os:

Hosting and Whois Zone

IP	141.193.213.20
Domain infomation	Domain Name: rarediseases.org Registry Domain ID: 0b04849b7ed345c89d2de555745c7e01-LROR Registrar WHOIS Server: whois.tucows.com Registrar URL: http://www.tucows.com Updated Date: 2022-06-05T08:49:02Z Creation Date: 1998-06-02T04:00:00Z Registry Expiry Date: 2023-06-01T04:00:00Z Registrar: Tucows Domains Inc. Registrar IANA ID: 69 Registrar Abuse Contact Email: [email protected] Registrar Abuse Contact Phone: +1.4165350123 Domain Status: clientTransferProhibited https://icann.org/epp#clientTransferProhibited Domain Status: clientUpdateProhibited https://icann.org/epp#clientUpdateProhibited Registry Registrant ID: REDACTED FOR PRIVACY Registrant Name: REDACTED FOR PRIVACY Registrant Organization: Data Protected Registrant Street: REDACTED FOR PRIVACY Registrant City: REDACTED FOR PRIVACY Registrant State/Province: ON Registrant Postal Code: REDACTED FOR PRIVACY Registrant Country: CA Registrant Phone: REDACTED FOR PRIVACY Registrant Phone Ext: REDACTED FOR PRIVACY Registrant Fax: REDACTED FOR PRIVACY Registrant Fax Ext: REDACTED FOR PRIVACY Registrant Email: Please query the RDDS service of the Registrar of Record identified in this output for information on how to contact the Registrant, Admin, or Tech contact of the queried domain name. Registry Admin ID: REDACTED FOR PRIVACY Admin Name: REDACTED FOR PRIVACY Admin Organization: REDACTED FOR PRIVACY Admin Street: REDACTED FOR PRIVACY Admin City: REDACTED FOR PRIVACY Admin State/Province: REDACTED FOR PRIVACY Admin Postal Code: REDACTED FOR PRIVACY Admin Country: REDACTED FOR PRIVACY Admin Phone: REDACTED FOR PRIVACY Admin Phone Ext: REDACTED FOR PRIVACY Admin Fax: REDACTED FOR PRIVACY Admin Fax Ext: REDACTED FOR PRIVACY Admin Email: Please query the RDDS service of the Registrar of Record identified in this output for information on how to contact the Registrant, Admin, or Tech contact of the queried domain name. Registry Tech ID: REDACTED FOR PRIVACY Tech Name: REDACTED FOR PRIVACY Tech Organization: REDACTED FOR PRIVACY Tech Street: REDACTED FOR PRIVACY Tech City: REDACTED FOR PRIVACY Tech State/Province: REDACTED FOR PRIVACY Tech Postal Code: REDACTED FOR PRIVACY Tech Country: REDACTED FOR PRIVACY Tech Phone: REDACTED FOR PRIVACY Tech Phone Ext: REDACTED FOR PRIVACY Tech Fax: REDACTED FOR PRIVACY Tech Fax Ext: REDACTED FOR PRIVACY Tech Email: Please query the RDDS service of the Registrar of Record identified in this output for information on how to contact the Registrant, Admin, or Tech contact of the queried domain name. Name Server: mia.ns.cloudflare.com Name Server: walt.ns.cloudflare.com DNSSEC: unsigned URL of the ICANN Whois Inaccuracy Complaint Form: https://www.icann.org/wicf/ >>> Last update of WHOIS database: 2023-04-01T20:44:27Z <<< For more information on Whois status codes, please visit https://icann.org/epp Terms of Use: Access to Public Interest Registry WHOIS information is provided to assist persons in determining the contents of a domain name registration record in the Public Interest Registry registry database. The data in this record is provided by Public Interest Registry for informational purposes only, and Public Interest Registry does not guarantee its accuracy. This service is intended only for query-based access. You agree that you will use this data only for lawful purposes and that, under no circumstances will you use this data to (a) allow, enable, or otherwise support the transmission by e-mail, telephone, or facsimile of mass unsolicited, commercial advertising or solicitations to entities other than the data recipient's own existing customers; or (b) enable high volume, automated, electronic processes that send queries or data to the systems of Registry Operator, a Registrar, or Identity Digital except as reasonably necessary to register domain names or modify existing registrations. All rights reserved. Public Interest Registry reserves the right to modify these terms at any time. By submitting this query, you agree to abide by this policy. The Registrar of Record identified in this output may have an RDDS service that can be queried for additional information on how to contact the Registrant, Admin, or Tech contact of the queried domain name.