Dravet Syndrome Foundation is a non-profit organization dedicated to aggressively raising research funds for Dravet syndrome, a rare and catastrophic form of epilepsy beginning in … dravetfoundation.org dravetfoundation.org dravetfoundation.org dravetfoundation.org
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Dravet Syndrome Foundation is a non-profit organization dedicated to aggressively raising research funds for Dravet syndrome, a rare and catastrophic form of epilepsy beginning in childhood, and related conditions. By offering research grants for syndrome-specific research with a novel approach, DSF can move researchers and...What is the risk of sudden death in Dravet syndrome?
Individuals with Dravet syndrome have a higher risk than the general population for sudden, unexpected death but that risk is still low. Dravet syndrome, previously called severe myoclonic epilepsy of infancy (SMEI), is an epilepsy syndrome that begins in infancy or early childhood and can include a spectrum of symptoms ranging from mild to severe.Is there a 12th Annual Research Roundtable for Dravet syndrome?
12th Annual Research Roundtable The Dravet Syndrome Foundation was honored to host [...] 2021 Annual Campaign We hope you will join us as a supporter [...] Meet Kendra R. Mulholland, DNP, MSN, APRN-CNP In this Community Spotlight, meet [...] 2021 DSF Grant Awardees DSF is dedicated to funding the highest caliber [...]Is there a link between Dravet syndrome and other epilepsy syndromes?
Some epilepsy syndromes, like PCDH19, a rare x-linked epilepsy found more often in females than males, share many characteristics with Dravet syndrome. There are subtle differences between these epilepsy syndromes and Dravet, and you should consult with your child’s neurologist if you have any questions about related epilepsies.
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